Many Biobanks are under pressure to adopt more sustainable, business-like mentalities in the future. The results of a ISBER survey on business planning in the Biobanking community is outlined in this post.
The Health Research Authority (HRA) have published new guidance on taking a proportionate approach to consent, particularly in reference to clinical trials.
A recent study has found that only around 9% of biobanks have a publicly available access policy. Given that most biobanks are funded by the public, there is an expectation that the samples they contain are made available for external research purposes that could ultimately have a social benefit. But for this to happen, clear access policies need to govern the conditions under which samples can be used for external… Read More »Only a minority of biobanks have a publicly available access policy
Spotlight on: Gautam Mehta Job title: Honorary Consultant and Senior Lecturer, UCL Research Project: Gautam is exploring new ways to treat patients with liver failure and alcohol-related liver disease. Liver disease is the third commonest cause of preventable death in the UK and rates are rising rapidly, therefore new treatments are urgently needed. Gautam’s research involves sequencing RNA (part of the genetic code of cells) from human liver and immune cells… Read More »Spotlight on: Gautam Mehta
Directory registration now a condition of REC favourable opinion The UK Ethics Committee Authority (UKECA) have now made registration in the UKCRC Tissue Directory a condition of the Research Ethics Committee (REC) favorable opinion for research tissue banks (RTB). The Research Ethics Committee favour collection of tissue for future research use by research tissue banks, however, there is an expectation that this tissue is made visible to the research community.… Read More »Directory registration now a condition of REC favourable opinion
Putting Patients First UKCRC TDCC attended Patients First on 28th November, 2016 – an event co-hosted by ABPI and AMRC. Here we outline the day’s events and what we can learn from the topics discussed. The event was opened by Aisling Burnand, AMRC, with an inspiring quote by Mary Mead, ‘Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing… Read More »Putting Patients First
Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for how a patient’s data can be used. In June the results of this review were… Read More »Proposed changes to data security and consent in the healthcare system
UK Biobanking Showcase 2016 The UKCRC TDCC’s annual meeting was held on 16th November, at the Kia Oval in London. UK Biobanking Showcase was a unique opportunity to bring together all stakeholders in the field. The day kicked off with a brief introductory video on the centre; Prof. Dame Jessica Corner, Pro-Vice-Chancellor at The University of Nottingham then opened the day with her thoughts on the initiative stating that humans… Read More »UK Biobanking Showcase 2016
UK Biobank of the year 2016 – shortlist announced! We are dedicated to promoting Biobanks and tissue custodians that go above and beyond in facilitating ground breaking research. We have asked researchers to nominate biobanks that have made their work possible. The shortlisted Biobanks for 2016 are: ALSPAC CCLG Tissue Bank Ethical Tissue Generation Scotland UK primary Sjogren’s syndrome Registry Northern Ireland Biobank Candidates were shortlisted based on their contribution… Read More »UK Biobank of the year 2016 – shortlist announced!
The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research
On the 25th October, The UKCRC Tissue Coordination Centre attended an event in parliament organised by The University of Nottingham. The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research was ran as part of Nottingham in Parliament day. The day saw more than 2,500 guests gather at 45 events across Parliament, celebrating all that is great about Nottingham. Read More »The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research