Commercial Principles

Principles for organisations integrating with the UKCRC Tissue Directory. This document sets out the core principles that the Centre should adopt when considering any commercial opportunities that may arise from the Directory. These principles shall be used by the legal teams at UCL or Nottingham to draw up an agreement with an organisation wishing to[…]

Only a minority of biobanks have a publicly available access policy

A recent study has found that only around 9% of biobanks have a publicly available access policy. Given that most biobanks are funded by the public, there is an expectation that the samples they contain are made available for external research purposes that could ultimately have a social benefit. But for this to happen, clear[…]

Proposed changes to data security and consent in the healthcare system

Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for[…]