GiveMySample.org – information for potential tissue donors
A free web resource for biobanks and medical researchers to share with their potential tissue donors.
Public Engagement
New customisable biobanking game developed to help educate patients
King’s Health Partners Cancer Biobank at Guy’s and St Thomas’ and Focus Games have developed a digital biobanking game. Here, Dr. Cheryl Gillett, Head of Biobanking at King’s College London, tells us more.
Patient data – balancing access and protection: All talk and no access?
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
Public support for transparency in Biobanking
Public support for transparency in biobanking The HTA and HRA have released a report, Consent to use human tissue and linked health data in research. This report details results from a series of workshops where the public shared their views on the topic. Although intended for the HTA and HRA, it provides examples of how to strengthen public support for biobanking and research participation. Consistent message about consent Five years ago,… Read More »Public support for transparency in Biobanking
Yarning to Consent: engaging in biobanking stories via knitting
Yarning to Consent: engaging in biobanking stories via knitting An introduction to biobanking What does knitting have to do with Biobanking? I wouldn’t be offended if someone didn’t see a connection between knitting and biobanking. But, sometimes we need unlikely pairings to entice people to think about a new subject. I met a woman in the summer who told me when she had some tissue removed during a procedure. We… Read More »Yarning to Consent: engaging in biobanking stories via knitting
Patient data and tissue samples – benefits, barriers and concerns
Patient data and tissue samples – benefits, barriers and concerns On 9th May, 2017, the UKCRC TDCC co-hosted the workshop ‘Patient data and tissue samples – benefits, barriers and concerns’ along with Use MY Data, Independent Cancer Patient’s Voice (ICPV) and the NCRI’s Cellular & Molecular Pathology (CM-Path) initiative. The event was a good opportunity to delve into the issues associated with tissue sample and data donation for research. Chris… Read More »Patient data and tissue samples – benefits, barriers and concerns
The immortal life of Henrietta Lacks
The immortal life of Henrietta Lacks Today, samples donated for medical research are anonymised so that any work performed on them cannot be traced back to the donor. But donation for research has not always worked like this. In 1951, tumour cells from a patient in the USA were grown and sent all over the world, later to be traced back to her and her family. We discuss the implications… Read More »The immortal life of Henrietta Lacks
Centre staff receives Public engagement award
Jessica Sims, Project and Engagement Manager for the UKCRC Tissue Directory and Coordination Centre, has received University College London’s Provost’s Award for Public Engager of the Year (Professional Services Staff) for her work in public engagement in biobanking. The award recognised Jessica’s recent project developing a biobanking board game to simulate the process of real-life biobanking. The project involved members of the public in helping to devise a game as… Read More »Centre staff receives Public engagement award
Poster prize award for biobanking board game project
The Centre recently presented a poster at the ESBB 2015 Annual Conference on our latest public engagement activity and were awarded the poster prize for the Education & Standards category. Our ‘Biobanking: the board game: Public engagement through table top game development’ outlined our UCL Beacon Bursary funded project that engaged people, who enjoy playing games, with the key messages of biobanking to create a prototype game. We demonstrated the… Read More »Poster prize award for biobanking board game project