Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
Public support for transparency in biobanking The HTA and HRA have released a report, Consent to use human tissue and linked health data in research. This report details results from a series of workshops where the public shared their views on the topic. Although intended for the HTA and HRA, it provides examples of how to[…]
Yarning to Consent: engaging in biobanking stories via knitting An introduction to biobanking What does knitting have to do with Biobanking? I wouldn’t be offended if someone didn’t see a connection between knitting and biobanking. But, sometimes we need unlikely pairings to entice people to think about a new subject. I met a woman in[…]
Patient data and tissue samples – benefits, barriers and concerns On 9th May, 2017, the UKCRC TDCC co-hosted the workshop ‘Patient data and tissue samples – benefits, barriers and concerns’ along with Use MY Data<, Independent Cancer Patient’s Voice (ICPV) and the NCRI’s Cellular & Molecular Pathology (CM-Path) initiative. The event was a good opportunity[…]
The immortal life of Henrietta Lacks Today, samples donated for medical research are anonymised so that any work performed on them cannot be traced back to the donor. But donation for research has not always worked like this. In 1951, tumour cells from a patient in the USA were grown and sent all over the[…]
Jessica Sims, Project and Engagement Manager for the UKCRC Tissue Directory and Coordination Centre, has received University College London’s Provost’s Award for Public Engager of the Year (Professional Services Staff) for her work in public engagement in biobanking. The award recognised Jessica’s recent project developing a biobanking board game to simulate the process of real-life[…]
The Centre recently presented a poster at the ESBB 2015 Annual Conference on our latest public engagement activity and were awarded the poster prize for the Education & Standards category. Our ‘Biobanking: the board game: Public engagement through table top game development’ outlined our UCL Beacon Bursary funded project that engaged people, who enjoy playing[…]