Health Data Research UK (HDR UK) has unveiled the first phase of the Health Data Research Innovation Gateway. The Gateway will enable researchers to find UK datasets related to their research.
data opt out
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
The national data opt-out In order to make the samples you donate really useful for research, Biobanks need to link them to data about you. Recently there has been changes to the control you have over this data. We talk to Alison Stone and Chris Carrigan from the patient movement use MY data to find out more about the national data opt-out… What is the national data opt-out? The national… Read More »The national data opt-out