Health Data Research UK (HDR UK) has unveiled the first phase of the Health Data Research Innovation Gateway. The Gateway will enable researchers to find UK datasets related to their research.
King’s Health Partners Cancer Biobank at Guy’s and St Thomas’ and Focus Games have developed a digital biobanking game. Here, Dr. Cheryl Gillett, Head of Biobanking at King’s College London, tells us more.
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
Public support for transparency in biobanking The HTA and HRA have released a report, Consent to use human tissue and linked health data in research. This report details results from a series of workshops where the public shared their views on the topic. Although intended for the HTA and HRA, it provides examples of how to strengthen public support for biobanking and research participation. Consistent message about consent Five years ago,… Read More »Public support for transparency in Biobanking
New HTA codes of practice In April the Human Tissue Authority (HTA) published updated Codes of practice. This guest blog by Regulation Manager, Fiona Maleady-Crowe explains what this means for Biobanks. What are the Codes of Practice? The HTA’s Codes of Practice provide practical guidance on the human tissue legislation and set out the HTA’s licensing standards. The Codes are important resources which help researchers and establishments comply with our… Read More »New HTA codes of practice
The immortal life of Henrietta Lacks Today, samples donated for medical research are anonymised so that any work performed on them cannot be traced back to the donor. But donation for research has not always worked like this. In 1951, tumour cells from a patient in the USA were grown and sent all over the world, later to be traced back to her and her family. We discuss the implications… Read More »The immortal life of Henrietta Lacks