Data sharing: Insight from Generation Scotland
Catch up on the webinar from 15th June with Archie Campbell, Chief Technical Officer at Generation Scotland.
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GDPR for Biobanks – A sheep in wolf’s clothing?
In our latest blog post we hear from Heather Coupar from MRC’s Regulatory Support Centre about General Data Protection Regulation (GDPR).
Researchfish: evidencing use of Human Sample Resources
The UKCRC Tissue Directory and Coordination Centre has produced a guide for researchers on how to acknowledge use of Human Sample Resources in Researchfish submissions.
The Health Data Research Innovation Gateway now live!
Health Data Research UK (HDR UK) has unveiled the first phase of the Health Data Research Innovation Gateway. The Gateway will enable researchers to find UK datasets related to their research.
UKCRC TDCC joins the UK Health Data Research Alliance
The UK Health Data Research Alliance is an independent alliance of leading healthcare and research organisations. The Alliance has just announced the addition of nine new members.
New customisable biobanking game developed to help educate patients
King’s Health Partners Cancer Biobank at Guy’s and St Thomas’ and Focus Games have developed a digital biobanking game. Here, Dr. Cheryl Gillett, Head of Biobanking at King’s College London, tells us more.
Patient data – balancing access and protection: All talk and no access?
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
The national data opt-out
The national data opt-out In order to make the samples you donate really useful for research, Biobanks need to link them to data about you. Recently there has been changes to the control you have over this data. We talk to Alison Stone and Chris Carrigan from the patient movement use MY data to find out more about the national data opt-out… What is the national data opt-out? The national… Read More »The national data opt-out
Patient data and tissue samples – benefits, barriers and concerns
Patient data and tissue samples – benefits, barriers and concerns On 9th May, 2017, the UKCRC TDCC co-hosted the workshop ‘Patient data and tissue samples – benefits, barriers and concerns’ along with Use MY Data, Independent Cancer Patient’s Voice (ICPV) and the NCRI’s Cellular & Molecular Pathology (CM-Path) initiative. The event was a good opportunity to delve into the issues associated with tissue sample and data donation for research. Chris… Read More »Patient data and tissue samples – benefits, barriers and concerns
Proposed changes to data security and consent in the healthcare system
Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for how a patient’s data can be used. In June the results of this review were… Read More »Proposed changes to data security and consent in the healthcare system