King’s Health Partners Cancer Biobank at Guy’s and St Thomas’ and Focus Games have developed a digital biobanking game. Here, Dr. Cheryl Gillett, Head of Biobanking at King’s College London, tells us more.
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
The national data opt-out In order to make the samples you donate really useful for research, Biobanks need to link them to data about you. Recently there has been changes to the control you have over this data. We talk to Alison Stone and Chris Carrigan from the patient movement use MY data to find[…]
£54 million funding to transform health through data science The UKCRC Tissue directory and Coordination centre will soon be embedded within one of six new Health data research centres in the UK. Health Data Research UK (HDR UK) is awarding £30 million funding to six sites across the UK to address challenging healthcare issues through use[…]
Patient data and tissue samples – benefits, barriers and concerns On 9th May, 2017, the UKCRC TDCC co-hosted the workshop ‘Patient data and tissue samples – benefits, barriers and concerns’ along with Use MY Data, Independent Cancer Patient’s Voice (ICPV) and the NCRI’s Cellular & Molecular Pathology (CM-Path) initiative. The event was a good opportunity[…]
Patient data & tissue samples – benefits, barriers & concerns This public workshop will explore the gaps and issues surrounding the use of human tissue samples for research. Co-hosted by the UKCRC Tissue Directory and Coordination Centre, ICPV and Use MY Data and CM-Path this event is aimed at patients, the public, researchers, biobankers and[…]
Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for[…]
The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research
On the 25th October, The UKCRC Tissue Coordination Centre attended an event in parliament organised by The University of Nottingham. The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research was ran as part of Nottingham in Parliament day. The day saw more than 2,500 guests gather at 45 events across Parliament, celebrating all that is great about Nottingham. […]
It is difficult to generalise what to expect when you donate your tissue to a biobank, as each biobank will operate in a slightly different manner. So this has been intended as a guide describing some of the key points during the various stages of biobanking to give you an idea what is likely to[…]