data

Proposed changes to data security and consent in the healthcare system

Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for how a patient’s data can be used. In June the results of this review were… Read More »Proposed changes to data security and consent in the healthcare system

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The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research

The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research

On the 25th October, The UKCRC Tissue Coordination Centre attended an event in parliament organised by The University of Nottingham. The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research was ran as part of Nottingham in Parliament day. The day saw more than 2,500 guests gather at 45 events across Parliament, celebrating all that is great about Nottingham. Read More »The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research

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What to expect when donating samples

It is difficult to generalise what to expect when you donate your tissue to a biobank, as each biobank will operate in a slightly different manner. So this has been intended as a guide describing some of the key points during the various stages of biobanking to give you an idea what is likely to happen. When will I be approached? A biobank may contact you at anytime but the… Read More »What to expect when donating samples